Living with Parkinson’s Disease. Meeting on September 27th – HenkBaron.nl

Parkinson’s disease is the fastest growing brain disease in the world. In the Netherlands, 63,500 people live with Parkinson’s disease. There are at least 10,000,000 worldwide. On Friday, September 27, Mantelzorg Berg en Dal is organising an information meeting on living with Parkinson’s disease. The meeting is from 2:00 pm to 4:00 pm at Het Kulturhus, Roerdompstraat 6 in Beek. Check-in is from 1:30 pm. This afternoon, the informal care Berg en Dal will provide information about Parkinson’s disease so that residents can better understand what this disease entails. They pay extra attention to what this means for their loved ones or informal caregivers. You will hear more about the symptoms, heredity, age, risks and the types that exist, and especially what this means in life after diagnosis for someone with Parkinson’s disease and their loved ones. The afternoon is dedicated to informal carers and those who care for them, but other interested parties are also welcome. The meeting is free of charge. Would you like to come? You can register until September 20th. You can register via [email protected] or 085 040 60 66. program:

1:30 PM – 2:00 PM entrance

2 pm opening

2:10 PM – 3:00 PM Presentations by:

• Miriam Koster, RadboudUMC, Parkinson’s Nurse About Parkinson’s Disease
• As an experienced caregiver/informal carer (and volunteer at the Parkinson’s Café Reggio Nijmegen), Hilde Wijngaards-Bernbroek talks about living with Parkinson’s disease as a neighbour and what consequences this can have on the environment.

3:00 PM – 3:30 PM break During the break, there is an opportunity to talk to representatives/specialists at the information tables of Mantelzorg Berg en Dal, Wmo, Alzheimer Café, the social team, Parkinson Café Regio Nijmegen, Zorg voor Parkinson, the occupational therapist. During the break, attendees can also ask written questions at the Mantelzorg Berg en Dal table. These will be answered anonymously after the break.

3:30 PM – 4:00 PM Dinner talk. Answering questions and explaining what informal care can mean Berg en Dal.. 4:00 pm ending.

About Parkinson’s Disease

Professor of Neurological Movement Disorders and Parkinson’s Disease Expert Bas Blom from Radboud University Medical Center: “With this growth, there will be almost thirteen million people in the world with Parkinson’s disease by 2040. We urgently need to do something about it, because Parkinson’s disease is one of the most debilitating brain diseases in the world.

“Parkinson’s disease is a very complex disease that originates in the brain, but the way the disease manifests itself is not the same for everyone. It affects men and women, young and old. Each one of them has their own Parkinson’s disease. From shaking hands and depression to standing rooted to the ground and no longer showing initiative. Treatment and guidance for Parkinson’s disease require a highly specialized and expert approach. The needs and wishes of the person with Parkinson’s disease and their loved ones must be examined again and again” (source Parkinsonnet). Your life also changes dramatically for your partner, family and other loved ones if you are faced with Parkinson’s disease. More information about Mantelzorg Berg en Dal can be found at www.mantelzorgbergendal.nl

Basic information: Forty Care and Informal Care Berg en Dal

Forte Welzijn is an independent local social welfare organisation. We support and encourage people in their personal and social development, both individually and collectively. We do this from a social perspective and strengthen people’s ability to make their own choices. Forte’s way of working is characterised by professional and honest actions. Forte works with other organisations that are also committed to people’s well-being. The informal care Berg en Dal is supported by Forte Welzijn.